(kidding... sort of!). Then somehow miraculously passes them, On a side note, and I seriously cannot figure this out to save my ass... why then, after eating them on the DL without me knowing, did CaCash (see what I did there?!) I don't know how she continued to gain weight amidst all this chaos, but she did. They kept stealing looks at each other, almost like, "Hey girl, nice tiara!" It was lacking convolutions, bumps and the normal length of our dogs' typical dumps, so this had me confused. horrific projectile reflux (And it might have been more intense than Claire's ever was -- One incident, she actually projectile vomited a distance of 15 feet, which if you do the math on that, considering she was approximately 18" tall at the time, this would be like a 6' tall person vomiting a distance of 60 FEET! The grass is what is throwing me. her reflux the contents of her stomach into the bowl I kept next to the couch
BRUTAL, yo. Cal & I are chatting away while we wait for Scott to come out with the goods when I spot him exit the premises, heading our way. whose chest his nose is pressed against above. On Friday, February 9, 2018, our sweet Claire, whom we never thought would ever get to take part in "normal" high school activities, WENT TO THE PROM.
We love all of you. Monday, December 01, 2014. her to be able to eat orally before age 1, maybe even age 2. Tim Tebow Foundation's Night to Shine prom. Was it brought back in for spite or as a trophy of honor? We bow to you & are so proud of you for being a voice for not only Claire but also for others who are unable to speak and be heard. Ummm, yeah. This is wayyyyy more than a one-person job. These vile "victims" make (roughly) the 38th & 39th known g-tube pads our dog, Cash, has thoughtlessly devoured. The party bus had already left and no one was inside the limo, so we quickly jumped in for a spin. My most recent bloggi... You're welcome in advance for not sharing every single one of my completely-fucked-up-to-the-point-you-would-be-concerned-for-my-actual-... People often reach out to me shortly after they have a child with special needs. It was different from a normal poo in that it had a defined D-shape. Anything different going on whatsoever? After I scrubbed my jeans for like 3 straight minutes until the baby wipe wore completely through, we cleaned up Mrs. Pocket's cling-ons.
Never doubt for a moment that your child isn’t strong AF because look at
very much longer.
I recognize it immediately upon closer inspection. would likely lose the ability to eat & that it was pretty unrealistic to think that frequently and ill often. Five and ten years ago, our family was forever changed. HA!
"No, yours is soooo much better, girrrrl! I've only recently found your blog and I love it. avocados) around 9-12 months of age that the reflux finally stopped. Surprised I can type, my hands are so weak from laughing!
Maybe one of the dwarves is "prairie doggin' it."
Just finding your blog...3 years after the fact but this post is beyond funny. They were supposed to be in the hospital No wait... it's not that hint-of-a-turd, fart-like aroma which dissipates rapidly. He was the coolest dad, so interactive, so patient, so loving, SO FREAKIN' FUN!
I remember being terrified once she turned 1 that I would soon see the decline
developmentally or even have vision.
The DJ was slaying, the videographer was capturing everyone dancing & projecting it onto a huge screen, and the rest of us were gettin' down with our bad selves! Why did he eat the grass if not to make himself barf.
formula to her mashed avocados & bananas. At least you can laugh about it!Miss seeing you all at C. Estates!Christy, Saturday Night Live seriously needs you as a writer--- I love all the different terms--- SO funny.xoxo, I feel your pain!! <3 www.thehartleyhooligans.com <3 "There is only one happiness in life -- to love and to be loved." Most have not been recovered (Thank God), though several random shards have been found amidst actual droppings on Poop Scooping Day with much disgust from the Scoopee. Her bi-weekly weight checks showed unbelievably slow but steady gains.
And do you have MAJOR intestinal distress if you did?!?! Letting her nails dry... and actually holding her "lickstip" (as Cal used to call it when he was a toddler!). OMFG. Josh Kelly, red carpet announcer, lit it UP! This poor woman and I had a hell of an afternoon after her gut decided to unleash a geyser of diarrhea while we were eating lunch at a park.
I just found your blog, and I just love it!
I am a big fan of you and your girlies and this is an old post but I just couldn't help maself, had to say thanks. Kids are darling! She too fought
I'm in Turd Town, and Lola's the Mayor. Clementine has vomited up some ugly stuff that smelled poopish. It isn't a secret that Us Hooligans have been MIA lately, and for the first time ever, I am perfectly OK with it. I guess my message to all the parents of children with special and superheroes and badass odds-defiers, every last one of them. Chronic dehydration is no joke. But all that being said, I love this goofball. They are fucking warriors It is clear to me now what I am seeing.
I knew she needed more liquids, so I would add an ounce or so of her OK, that would be NOTHING. I'm not sure who was having more fun that night -- Claire, Scott or me! never forget all the people who told me right after Claire was born that she ~Jack Beauregard, Tuesday, October 11, 2011 at 10:57:00 AM CDT, Tuesday, October 11, 2011 at 2:19:00 PM CDT, Tuesday, October 18, 2011 at 3:29:00 PM CDT, Wednesday, October 26, 2011 at 5:28:00 PM CDT, Friday, January 27, 2012 at 8:41:00 PM CST, Thursday, March 29, 2012 at 10:43:00 PM CDT, Tuesday, March 25, 2014 at 6:32:00 PM CDT, Sunday, January 25, 2015 at 2:36:00 AM CST, Monday, December 7, 2015 at 4:37:00 PM CST. I turn Lola's ass around to get a better look -- and yes, all of this IS still occurring in the back seat of our truck (which is just one year old & seriously Scott's pride & joy STILL...) -- NOT GOOD. Why yes, Daddy & Lola *are* up to their usual antics!
What ensued after this moment is but a blur to me now... a frightening blur. I didn't think I could possibly love this man o' mine anymore than I already did, UNTIL THIS NIGHT. at age 3 that we realized how important her hydration was. April 28, 2006 ~ October 12, 2019 [Post from Facebook on October 12, 2019] Early this morning, with a full moon shining in our PICU window, our sweet Lola ascended into the Heavens to be reunited with her big sister, Claire. It would have to do, as I didn't have back-up jeans on hand, dammit. I know that it can only be one person then. The world is such a better place because you are in it. I wonder if she was saving it up.. just for a special occasion.
I wanted them to reach their
Let's ditch these losers!" To all the families out there who just had a child with special needs... YOU GOT THIS. cannot learn how to coordinate this any longer. see how much she lost, and it was usually 3/4+ of the total amount I fed her. I don't know who to thank.. Cash or Gwyn. It has a traaaaaaaaaain!!!!! point, their little bodies wouldn’t be able to fight this anymore. night. thought Claire would live to age 1. Cal NEVER thought they'd fit her, but they were PERFECT. WAS. They worried about her small size and fragility. Yep. Brianna & Claire were like long-lost besties after 30 seconds! You are and will always be family to us, and we love you so very much. We had many of those episodes with her! You gu... *NOTE: PLEASE SHARE THIS BLOG POST!!!!! I'm so screwed. Cash was flat-out. feedings. I remember them telling me how it wasn’t that abnormal for When they come out of the dryer, we are on lockdown to prevent theft by whippet. Instantly I smell poop. Easy peasy. I remember praying for two things those last It was lacking convolutions, bumps and the normal length of our dogs' typical dumps, so this had me confused. We are eternally grateful for your giving heart, your ability to see the beauty in places most cannot, and for "fighting for those who can't fight for themselves." I question, "Cal, did you fart? full potentials no matter what. HEAVEN!!! Classic positioning having Claire's feeding pump in the background. accidentally aspirated into their lungs will make them sick with pneumonia. placed a month later when her body was stronger, and we’ve never looked back since. Her body was overcome by back-to-back viruses as well as other medical complications that she was not able to overcome. Fast forward to a few months before Lola’s birth when we found out ever made was getting Claire a g-tube, and 13 years later, I have zero regrets I would then sit her up, burp her, and watch ", I panic. ight as I was feeding Lola her bottle, I remembered
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